Max and his Auntie at the Walk
Me, Max and the tired puppies after the walk.
Next stop -- the 2nd Annual Brewer's Ball on October 5th!
Fargobrewersball.com
Wednesday, May 16, 2012
9th Annual Fargo Great Strides Walk for Cystic Fibrosis
Two weeks ago we had our annual Cystic Fibrosis Walk! The weather for once was awesome. Had a group of over 250 individuals. Not sure how much Team Max raised; however, the walk itself raised over $90,000. More than $15,000 than last year.
In honor of Cinco de Mayo -- the hotel where we hold our Brewer's Ball catered our walk and provided "Tacos in a Bag". Our fearless leader from the CFF dressed "appropriately" for the occasion.
Friday, March 16, 2012
Sinus Disease and Cystic Fibrosis
From day one, our son has always had a stuffy nose. Due to his CF causing extra thick, sticky mucus, I never so his nose run until he was 2 1/2 years old and was started on a nebulized medication called Pulmozyme, which is used to thin the mucus in his lungs.
We'd been warned about the potential for polyps, sinus disease, but other than a stuffy sounding nose from time to time, there didn't appear to be any issues. Then this past year, he became more of a mouth breather. His pediatrician commented on nasal inflammation and stuffiness. Asked if he snored. Up until a few months ago, he hadn't snored. Suddenly he snored, had episodes where he stopped breathing for a few seconds, was a very restless sleeper. He began to have issues with reading out loud in school. He'd have to stop and gasp for breath midsentence.
At his last CF clinic appointment, his doctor had him breathe through his nose and there was no airflow coming from his left nostril. So he suggested that we send him to an ENT when we went came back to the City for his CF appointment.
Being that his sinus issues became worse and thinking it was adenoids or polyps that may require surgery, we got a referral to an ENT last month. Two specialists proceeded to stick a long thin camera up his sinus passage. I swear the darned thing went up into his brain. Bleah! The ENTs were baffled -- no polyps, no adenoids. Lots of inflammation near the FRONT of his nostril and what appeared to be cobblestoning along his septum. So a CT scan was ordered and they prescribed a nasal steroid -- Nasonex.
Within minutes of using the nasal spray, he was able to breathe thru his nose for the first time in months. He slept peacefully with no snoring. The results of the CT scan weren't surprising. Sinus Disease of the Maxillary, Bilateral and Right Ethmoid Sinuses; however, being that the nasal spray is apparently doing to trick, we're just going to monitor rather that have him undergo any unnecessary surgery at this point
We'd been warned about the potential for polyps, sinus disease, but other than a stuffy sounding nose from time to time, there didn't appear to be any issues. Then this past year, he became more of a mouth breather. His pediatrician commented on nasal inflammation and stuffiness. Asked if he snored. Up until a few months ago, he hadn't snored. Suddenly he snored, had episodes where he stopped breathing for a few seconds, was a very restless sleeper. He began to have issues with reading out loud in school. He'd have to stop and gasp for breath midsentence.
At his last CF clinic appointment, his doctor had him breathe through his nose and there was no airflow coming from his left nostril. So he suggested that we send him to an ENT when we went came back to the City for his CF appointment.
Being that his sinus issues became worse and thinking it was adenoids or polyps that may require surgery, we got a referral to an ENT last month. Two specialists proceeded to stick a long thin camera up his sinus passage. I swear the darned thing went up into his brain. Bleah! The ENTs were baffled -- no polyps, no adenoids. Lots of inflammation near the FRONT of his nostril and what appeared to be cobblestoning along his septum. So a CT scan was ordered and they prescribed a nasal steroid -- Nasonex.
Within minutes of using the nasal spray, he was able to breathe thru his nose for the first time in months. He slept peacefully with no snoring. The results of the CT scan weren't surprising. Sinus Disease of the Maxillary, Bilateral and Right Ethmoid Sinuses; however, being that the nasal spray is apparently doing to trick, we're just going to monitor rather that have him undergo any unnecessary surgery at this point
Tuesday, March 6, 2012
2012 Great Strides Walk for Cystic Fibrosis
2012 Great Strides Video
Just a little video we put together for the May 5th Cystic Fibrosis Walk in Fargo.
Also, Save the Date! October 5th is our 2nd Annual Brewer's Ball at the Hilton Garden Inn in Fargo! Serving up a Cure One Pint at a Time!
Just a little video we put together for the May 5th Cystic Fibrosis Walk in Fargo.
Also, Save the Date! October 5th is our 2nd Annual Brewer's Ball at the Hilton Garden Inn in Fargo! Serving up a Cure One Pint at a Time!
Thursday, February 23, 2012
Great Strides Walk for Cystic Fibrosis
Great Strides
A cause very near and dear to me is the Cystic Fibrosis Foundation (CFF). Nine years ago, when I was pregnant with Spittlefish, we had no idea that LG and I were carriers of a gene that causes Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system of over 30,000 individuals in the United States.
People with CF can have a variety of symptoms, including:
A cause very near and dear to me is the Cystic Fibrosis Foundation (CFF). Nine years ago, when I was pregnant with Spittlefish, we had no idea that LG and I were carriers of a gene that causes Cystic Fibrosis, an inherited chronic disease that affects the lungs and digestive system of over 30,000 individuals in the United States.
People with CF can have a variety of symptoms, including:
- very salty-tasting skin;
- persistent coughing, at times with phlegm;
- frequent lung infections;
- wheezing or shortness of breath;
- poor growth/weight gain in spite of a good appetite; and
- frequent greasy, bulky stools or difficulty in bowel movements.
Me and Spittlefish at our first CF Walk when DS was just 11 months Old.
Please consider participating in a CFF Event in your area.
Friday, November 4, 2011
Serving up a cure one pint at a time
Last month we had our First Annual Brewer's Ball for Cystic Fibrosis!
Over 240 guests! Was an awesome event which raised over $45,000 for the Cystic Fibrosis Foundation. We had over 18 Beers to choose from, an endless supply of pub food, great music! Can hardly wait 'til next year's event!
The photo below includes me, the official graphic artist for the Brewer's Ball and our longtime friend and my husband LG --- otherwise known as the loud german. Prior to the Brewer's Ball as I'm getting ready, LG calls me from a local bar and I'm freaking out because we're supposed to introduce the Bid for a Cure video. My fear was he'd be roaring drunk and announce "I Love You Man" to the audience. He wasn't; however, he did announce to the audience my fears, followed by "I Love You Guys". Le Sigh!
Over 240 guests! Was an awesome event which raised over $45,000 for the Cystic Fibrosis Foundation. We had over 18 Beers to choose from, an endless supply of pub food, great music! Can hardly wait 'til next year's event!
The photo below includes me, the official graphic artist for the Brewer's Ball and our longtime friend and my husband LG --- otherwise known as the loud german. Prior to the Brewer's Ball as I'm getting ready, LG calls me from a local bar and I'm freaking out because we're supposed to introduce the Bid for a Cure video. My fear was he'd be roaring drunk and announce "I Love You Man" to the audience. He wasn't; however, he did announce to the audience my fears, followed by "I Love You Guys". Le Sigh!
Wednesday, May 11, 2011
Seance?
The other night we were having dinner at the outlaws, as there were some out of town guests visiting--- my husband's aunt, her granddaughter and great-granddaughters, who happen to be quite religious. When it came time to eat, my MIL asked if the aunt would say table grace and then everyone reached out to hold hands. Apparently this isn't something the Spittlefish has ever witnessed or experienced before because in the middle of the prayer he asks....
"Are we going to be talking to 'ghost-es'?" Zoinks! Almost as good as the time another cousin who was supposedly being raised as a good Catholic asked my FIL, "Uncle Bob, could you walk downstairs with me? The picture of the giant Indian scares me!" Er, that would be a picture of Christ. :)
"Are we going to be talking to 'ghost-es'?" Zoinks! Almost as good as the time another cousin who was supposedly being raised as a good Catholic asked my FIL, "Uncle Bob, could you walk downstairs with me? The picture of the giant Indian scares me!" Er, that would be a picture of Christ. :)
Friday, March 11, 2011
Yea, it's Friday
TGIF and about the time we head home from work...a blizzard hits. Oh joy. At least we can stay home and watch a bunch of ugly American whiners on House Hunters International. Even Spittlefish thought the whining was a bit much tonight. Not MY whining, but the single gal from NYC.
Glad the week is over. LG had a craptastic week of personnel issues, people annoyed with his boss and taking it out on him. He was so stressed he didn't even go to the "drunken place" as Spittlefish calls it, to unwind after work. I was surrounded by sick people all week who thought they were to important to stay home and decided to spread their germs and happiness. Even some little girl at Spittlefish's gymnastics group hurled. Yea! My boss apparently got sick suddenly Wednesday morning and hit the road. Glad he did; however, we had several reports to get out for a meeting Monday night and I wasn't privy to a bunch of the technical data and my other supervisor decided to ditch work the next day. However, I was figuring things out and was bound and determined to show everyone how great I was. Making great progress and then my supervisor emails me and asks me to send him the reports. Oh well, I done good, he didn't have to modify much of anything and I pretty much made it known what a good little worker bee I was. Oh and don't get me started about the coven of office witches up front who bring back such fond memories of junior high. I just don't understand how some people can be so miserable and unhappy 24-7. Wow!
Was planning to spray Lysol all over the big boss' office; however, he felt better and was back at work this morning. Figured he wouldn't appreciate fumigating him. Was a slow day at work and was going to volunteer to fill sandbags at the County shop in preparation of the spring melt (flood), but they were turning away workers. I was planning to hang out with the convicts and street crew. Oh well.
Spittlefish was pretty much possessed this week. Tuesday he got the dreaded "blue" on his school behavior calendar, but couldn't remember why he got in trouble. Emailed his teacher for an explanation so we could punish his punk ass. Next day ANOTHER blue with explanation "not following directions". Had a come to Jesus meeting, explained no video games during his vest -- he'd have to watch cartoons if he got another blue. Yesterday I ask him what color he got -- mumble mumble... What was that? He replies "I did na nah na nah nahhhh". Lovely talking back to the teacher. That's my boy. Made him write a letter to his teacher apologizing. Today no school, so he was warned to be good in daycare or else. He was okay, but refused to eat lunch except milk because the noodles weren't to his liking, the corn was mush and he didn't have time to eat his cake or bread or pears. Wow!
So we're waiting out the blizzard and here's hoping tomorrow -- the next week will be a vast improvement and that none of us catch whatever all the sickies had at work, etc.
Glad the week is over. LG had a craptastic week of personnel issues, people annoyed with his boss and taking it out on him. He was so stressed he didn't even go to the "drunken place" as Spittlefish calls it, to unwind after work. I was surrounded by sick people all week who thought they were to important to stay home and decided to spread their germs and happiness. Even some little girl at Spittlefish's gymnastics group hurled. Yea! My boss apparently got sick suddenly Wednesday morning and hit the road. Glad he did; however, we had several reports to get out for a meeting Monday night and I wasn't privy to a bunch of the technical data and my other supervisor decided to ditch work the next day. However, I was figuring things out and was bound and determined to show everyone how great I was. Making great progress and then my supervisor emails me and asks me to send him the reports. Oh well, I done good, he didn't have to modify much of anything and I pretty much made it known what a good little worker bee I was. Oh and don't get me started about the coven of office witches up front who bring back such fond memories of junior high. I just don't understand how some people can be so miserable and unhappy 24-7. Wow!
Was planning to spray Lysol all over the big boss' office; however, he felt better and was back at work this morning. Figured he wouldn't appreciate fumigating him. Was a slow day at work and was going to volunteer to fill sandbags at the County shop in preparation of the spring melt (flood), but they were turning away workers. I was planning to hang out with the convicts and street crew. Oh well.
Spittlefish was pretty much possessed this week. Tuesday he got the dreaded "blue" on his school behavior calendar, but couldn't remember why he got in trouble. Emailed his teacher for an explanation so we could punish his punk ass. Next day ANOTHER blue with explanation "not following directions". Had a come to Jesus meeting, explained no video games during his vest -- he'd have to watch cartoons if he got another blue. Yesterday I ask him what color he got -- mumble mumble... What was that? He replies "I did na nah na nah nahhhh". Lovely talking back to the teacher. That's my boy. Made him write a letter to his teacher apologizing. Today no school, so he was warned to be good in daycare or else. He was okay, but refused to eat lunch except milk because the noodles weren't to his liking, the corn was mush and he didn't have time to eat his cake or bread or pears. Wow!
So we're waiting out the blizzard and here's hoping tomorrow -- the next week will be a vast improvement and that none of us catch whatever all the sickies had at work, etc.
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