Thursday, October 25, 2012

Autumn has arrived

Here's an out take from the wedding photos last month.  I just find it hysterically funny with the bride struggling to hold onto her crying niece and Max the Ringbear running off in the background.

We have a new addition to our family.  Our automobile family.  Picked up a 1974 VW Microbus.  It runs, but needs new tires and a little engine work.  Interior is in great shape.  Anxious to road trip in it this summer.

We had our first school conference for the year.  Due to some of the behavioral issues in class we had a combination meeting with several staff members.  After brainstorming for nearly 2 hours we came to the conclusion that he's got some anxiety issues.  Could be due to realizing he's different because of his cf, could be partly because he has a heck of a time writing -- takes him FOREVER to write.  He's doing above average = excellent in all his classes.  Mostly A's and B's.  He's exclaimed a few times before even attempting to do homework that it's "too hard".  Believe he panics that it's going to take to long.  Think the staff had their eyes opened a bit to in terms of how much the poor kid spends on vest & nebulizer treatments at the expense of play time and being a normal child. 

On a good note Max no longer needs speech services, so that means he won't be taken out of class weekly.  He still needs OT for his writing.  While it'd be much easier to just put him in front of a computer and say "here, type it out", the kid is eventually going to have to learn to write.

Halloween is in less than a week.  He wants to be a mummy.  So I picked up gauze.  Should be interesting.  This weekend we're going to carve pumpkins and his grandparents house and order pumpkin shaped take-n-bake pizza for supper.

Max also gets his bible during church this Sunday.   Apparently his parents aka the heathens are supposed to go up in front of the church, put our hands on his shoulders and get blessed.  Not sure if this is some new age Lutheran thing or what.  But it's a surprise for Max and I'm sure he'll be thrilled.  We were supposed to highlight special passages for him.  Being the lapsed Presbyterian that I am, I only had a couple I could think of.  Then I emailed the right reverend (my dad) and he came up with a few as well.   I was tempted to use the line Samuel L. Jackson used in Pulp Fiction...  :)

Days are getting shorter and cooler.  Appointments for flu shots and follow up doctor's appointments have been scheduled for the coming months.  Local CF/Pediatrician, then CF Doctor and ENT in City.

Monday, October 8, 2012

Brewers Ball 2012

Friday night was the 2nd Annual Brewer's Ball for Cystic Fibrosis! 

Helped set up in the morning.  We had two, 99 bottles of beer to auction off.

I opted not to wear the blue blouse.  Not because my boobs were hanging out, but because it reminded me of the maternity tops I wore when pregnant with Max.
Friend of ours opted to wear a kilt.  My husband thinks he needs one now!

The two brothers. 


Save the date for next year!

Arrived home after 2 am to find our child was wide awake and demanding nachos.  So he had his snack while our friends son "rested" on the couch next to him.

We raised over $60,000 for research for the Cystic Fibrosis Foundation.  We laughed and cried.  Ate and drank way too much!  But it's for the kids!  :)